Baker went into surgery at 6:00 PM this evening, and they finished at 8:30 PM. This hospital is completely different then his normal one. It's a larger hospital hospital, and the staff is not as friendly. We both felt more like a number, then NICU parents. When we talked to the doctor after the surgery, he hit us with another surprise. Baker's ROP was actually Stage 3 with "plus" disease or "severely advanced" according to the surgeon. We were completely blindsided by this news, since his original prognosis yesterday was Stage 2. We came into this with the understanding that the surgery was more preventative, and that the disease was not that advanced. We were wrong. The doctor that performed the surgery of course was pretty callous abut the whole thing, and left us with no solid outcomes for Baker's eyesite. He will get drops for the next 10 days and a follow up exam in 2 weeks. The other thing we were told that the surgery will effect his peripheral vision (we aren't happy about this at all.)...
Anyway again we are left with the feeling that we've been run over by a train, but still have hopes that Baker will pull through this challenge like he did every other one.
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4 comments:
I know this is not the news you were hoping for. As new parents, you have had such great highs and lows, and through it all Baker has overcome! I know I don't have to tell you to stay strong and keep the faith! What a beautiful boy you have, with a great fighting spirit!!
We love you guys, Summer.
I am praying for little Baker and know God is watching over him. He has been such a fighter, he will overcome this too. Have faith, everything will work out for the good.
Nancy
As always, you guys are in our thoughts and prayers, and maybe Baker is just gearing up to be the amazing inspiration for some Geordi La Forge-like glasses, I have faith that all will be better, and I'm sorry you have to deal with the less-than-nurturing place for you right now. Love is the most important thing, and you guys have a bucketfull!
-Annie and the guys
Yikes! Man I'm so sorry to hear that, Cousins. Our love and warm thoughts are always with you guys.
Love,
Sky & Chris
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