Baker is Home!!!!

We finally made it home with Baker last night around 8:00 PM. We had to wait all day for his oxygen, and we got a taste of the logistical nightmare that it is to go anywhere with our little miracle. He has a mini oxygen tank, oximeter, and apnea monitor that we have to carry around. All of these devices have 1 or more probes sticking on Baker and when we move him we have to be able to reach all the devices in case of an alarm. When we got home last night we met the home oxygen delivery person, who had the humongous oxygen tank for Baker's home use. The tank is about as tall as I am and is now part of our dining room. He has tubing that will stretch to every room of our home.

It was such a joyous moment seeing our wonder boy at home, no nurses, doctors or other sick babies just Baker and Mom and Dad. We finally can close the first chapter of Baker and start the next.

Of course we didn't sleep much at all last night. Both his monitors false alarmed any time he moved. The oximeter sounds like an old alarm clock just louder and the apnea monitor lets out an ear piercing beep (like a smoke alarm). Once one of them goes off it's like a spiral effect – it scares Baker and makes him twitch and cry which sets off another alarm. He had no apneas or heart rate dips last night every single alarm we got was a false positive. We put a call in to the company that provided all the alarms to see if they have any ideas to stop the false positives, we have to at least be able to get a full hour of sleep in at a time right?

Here is to everyone that has followed his progress and prayed for his good will and has provided support for us and him. We thank you from the bottom of our hearts. The blog will continue so stay tuned…